‘Knowing and Treating Kosaki/Penttinen syndrome’ international collaborative consortium: recommendations for follow-­ up, natural history and a real-­ life observational study about safety and efficacy profile of tyrosine kinase inhibitors

Michaël Bouhatous ‍‍, Yordi-­; Bredrup, Cecilie; Maurer, Agnes; Mirakovska, Liubinka; Foster, Alison; Kosaki, Kenjiro; Jost, Céline; Baptiste Demoulin, Jean-­; Luu, Maxime; Vabres, Pierre; Emmanuel Kurtz, Jean-­; Schaefer, Elise; Guimier, Anne; Cormier-­Daire, Valerie; Lim, Derek; Thompson, Sarah; Olson, Lorin; Ryong Kwon, Hae; Aguirre-­Rodriguez, Cristina; Hernandez-­Dorronsoro, Unai; Martinez-­Soroa, Itziar; Iznardo, Helena; Jr Mascaró, José-Manuel; Baselga, Eulalia; Kalantari, Silvia; Mussa, Alessandro; Gazzin, Andrea; Carli, Diana; Svinvik, Ingrid; Mutlu-­Albayrak, Hatice; Bluefeather, Sarah; Zarate, Yuri; Takenouchi, Toshiki; Naicker, Thirona; Chateau, Antoinette; Gokhul, Ashmika; Dube-­Pule, Anele; Haniffa, Muzhirah; Ong Peitee, Winnie; Nordgren, Ann; Carpentier, Maud; Binquet, Christine; Briffaut, Anne-­Sophie; Bal, Laurence; Pond, Dinel; F Rustad, Cecilie; Bardou, Marc; Faivre, Laurence